To Researchers in Spina Bifida:
Please be on the lookout for a CDC funding opportunity to be
announced in December, 2009. All potential applicants must
have access to a representative sample of persons with Spina
Bifida in a defined population.
Aims of the study will be to:
Assess survival characteristics
Identify patterns of hospital utilization, including
inpatient, outpatient and emergency department visits
and reasons for the visits
Assess whether people affected by spina bifida are
at increased risk of developing certain conditions,
specifically cancer and psychiatric disorders.
Assess whether the variation in employment and
independence achieved by adults affected by spina bifida
is explained in part by the frequency and intensity of
the secondary conditions they experience earlier in
life.
This notice is posted to ensure equal advance notice to
all potentially interested parties.
Date:
October 23, 2009
Content source: National Center on Birth Defects and Developmental
Disabilities
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